Clinical Research Scientist, SFARI

Simons Foundation

Clinical Research Scientist, SFARI

  • Institution: Simons Foundation
  • Location: New York, NY US
On-Site

Clinical Research Scientist, SFARI

  • Simons Foundation | New York, NY US
  • Hourglass IconJob Post Expiration: November 25, 2022
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Job TitleClinical Research Scientist, SFARI

Position TypeFull Time

Job Category Researcher/Fellowship

Salary Range -

Location New York, NY US

Application Deadline -

Contact Information

Contact Name HR

Department -

Email employment@simonsfoundation.org

Phone -

Job Description

POSITION SUMMARY

SFARI’s mission is to improve the understanding, diagnosis and treatment of autism spectrum disorders by funding innovative research of the highest quality and relevance.

Reporting to the Senior Project Manager of SFARI Resources and Compliance and the Senior Project Manager of Simons Searchlight , the Clinical Research Scientist will help define the clinical study protocol measures and lead various data activities for the Simons Searchlight collection and other SFARI clinical cohorts . Activities include evaluation and interpretation of clinical and neuropsychological measures, data review and quality assurance, data analysis and preparation of statistics for presentations, publications and community reports, developing collaborations and data alignment with rare disease registries and creating reports and summaries for internal and external inquiries. Depending on expertise, activities may also include serving as a subject matter expert in planning Searchlight protocol, including goals, measures and reports. The Clinical Research Scientist will work with the current clinical research psychologist and project managers in promoting the research goals of SFARI and bringing research expertise to the team’s day-to-day activities.

This is a full-time position located at the Simons Foundation’s offices in New York City.

ESSENTIAL FUNCTIONS/RESPONSIBILITIES

  • Research, evaluate, implement and interpret clinical, neuropsychological and medical history measures for SFARI cohorts; participate in creation of surveys and questionnaires.
  • In conjunction with Project Managers and Clinical Psychologist, may consult with external subject matter experts and Simons Searchlight leadership to plan goals for the cohort; identify relevant measures and plan order of release based on research priorities and other needs
  • Draft and/or advise on language for clinical items in study-related workflows and reports; review and test workflows for clinical issues/accuracy and monitor post-launch.
  • Develop and/or manage relationships and collaborations with rare disease registries with regard to data alignment.
  • In collaboration with other SFARI staff and external investigators, contribute to efforts of publication of SFARI cohort data.
  • In collaboration with other SFARI staff, lead efforts related to data quality/cleaning and release for SFARI cohorts and external studies recruiting SFARI cohort participants (Research Match).
  • Delegate work to other SFARI staff and consultants as needed to fulfill deliverables and job duties
  • Collaborate with other SFARI staff to provide participant-friendly phenotype data, presentations and summaries to the Simons Searchlight team and for patient advocacy organization conferences
  • Collaborate with Communications team to develop effective methods to disseminate reports and other relevant information to participant and research communities (e.g., webinars, articles, Facebook Live, etc.).
  • Work with Product team and other staff on requirements to augment internal data summary dashboards.
  • Analyze, interpret, prepare and/or present data for publications, posters, brochures, snapshots and presentations for SFARI cohorts.
  • Test workflows for clinical issues/accuracy; test relevant data collection and review platforms.
  • Prepare, review and update SFARI Base cohort researcher documentation (data dictionaries, release notes).
  • Depending on expertise: attend conferences and present relevant information back to the SFARI clinical team; participate in SFARI Request for Application and Research Match application reviews
  • Participate in SFARI activities, including staffing SFARI booths for annual conferences, assisting with patient advocacy organization conference, etc.
  • Aid other data-related projects at the Simons Foundation as needed (e.g., answering questions from internal staff or external researchers).

MINIMUM QUALIFICATIONS

Education

  • Master’s degree or Ph.D./Ed.D. and postdoctoral experience in related research or clinical field

Experience

  • At least 5 years of relevant work experience
  • Proficiency with scoring and/or summarizing surveys and common psychological measures (IQ tests, ASD instruments such as ADOS, ADI, SCQ, etc., a plus) and familiarity with interpretation of measures and scores
  • Familiarity with ASD and other child developmental diagnoses
  • Proficiency with manipulation of data files (csv/xls)
  • Proficiency with statistical analysis, including data cleaning and preparing statistics with social science data
  • Experience querying using SQL and/or use of statistical packages such as SPSS, STATA or R
  • Experience with large datasets, potentially including aggregating clinical EEG and/or MRI data or digital data
  • Experience with preparing graphics (such as histograms) and figures for publication, conference posters and presentations.
  • Experience using PowerPoint and functions and formulas in Excel

Related Skills & Other Requirements

  • Must be self-motivated with ability to take on independent work in clinical data (with specific training in SFARI cohorts)
  • Must be detail oriented with excellent organizational skills and logical reasoning ability
  • Must be efficient and able to combine information across sources
  • Must have knowledge of published standards and written documentation with regard to clinical data
  • Must have excellent written and verbal communication skills

THE SIMONS FOUNDATION’S DIVERSITY COMMITMENT

Many of the greatest ideas and discoveries come from a diverse mix of minds, backgrounds and experiences, and we are committed to cultivating an inclusive work environment.The Simons Foundation actively seeks a diverse applicant pool and encourages candidates of all backgrounds to apply.We provide equal opportunities to all employees and applicants for employment without regard to race, religion, color, age, sex, national origin, sexual orientation, gender identity, genetic disposition, neurodiversity, disability, veteran status, or any other protected category under federal, state and local law.

 

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